#501 Shazam! $50,000!

The Power of Shazam!

Mets Monday and time before the big holidays arrive to educate the masses on what's going on in the metastatic world.  We don't get holidays off so we might as well spread the word  (opposite of good cheer) to others and how research is so desperately needed.

My most recent pet scan revealed bone metastasis progression to the other hip, upper arms, shoulder blades and lower back area.  Never a dull moment!  The key is to keep it contained to the bones and  me comfortable while we wait for this next treatment to start rocking and rolling.

To enlighten yourself on exactly what are Bone Mets--click and become educated today.

Oh, did I mention how you can help? Our December 31st challenge ($50,000 by the end of the year) is still going strong and with your year end tax deduction we will make our goal.  Every dollar you donate doubles which may double our chances of finding a cure.  Go to UW Carbone Cancer Center and shazam!  we are all winners!

A quadruple thanks to you from me and from the hard working researchers at the UW Carbone Cancer Center.

Thanks for reading #501 of 7777.

#500 Every. Single. Day.

 Smiling. Every. Day

The 500th post!  What profound or heartfelt statement could I make on this golden entry?

Maybe a reflection on the past two and a half years living with metastatic breast cancer would be a beginning.  I have preached and hollered about the statistics of this disease and how funding needs to be increased and how we are dying every day--113 today, but I haven't written how it feels to live every single day not only knowing the facts but feeling the effects from the drugs and the cells mutating in my body at a faster rate than the drugs can stop it.

The good days do come and I embrace them with a vengeance.  Swimming, exercising with my buddies at the Zone or taking a walk with friends equal days that must be cherished and revered.  I have always been an active person and when I can get out and do something it is a treasured gift. When those wonderful days arrive I'm reminded that this is the best that it will get because around the corner could be one of the dreaded rotten days that pop up when least expected.

On those not so great days getting out of bed is an effort, talking to anyone is exhausting and the reminder that I have cancer raging through my body is debilitating.  This last one--the debilitating condition of the disease--is the one that wrecks havoc on my very being.  Mentally preparing myself for getting through another day--good or bad--is difficult because no matter what kind of day I am having the *&^%$ cancer is still there.  The best is today and tomorrow it will be the next best until...until the end, I suppose.

The pain, the fatigue, the unmentionables that go along with the side effects never truly go away.  I'll put on my smiling face and you may not know what kind of day it is and that's okay.

But what I'm really trying to say is:

Cancer wears you down.  That's it in a nutshell as I try to analyze and help others understand about my daily life.  I do live fully and completely as I can.  I do have a positive outlook but the word, reality, hits me in the face

   Every. Single. Day.  

And there is no getting around it.  Do I curl up in the fetal position and surrender?  Of course not--not today or any other day and that is why I keep advocating and encouraging others to advocate with me.  Hands clasped together and we are a force that will not be stopped.  Please, share and join me this holiday season by donating to the UW Carbone Cancer Center at my website www.onewomanmanylakes.org.  All donations made by December 31st--(End of the year tax write-off!) will be matched.  50,000 grand is the goal and we are getting there!

My daughter and my granddaughter should never have to think about "good days and bad days" of cancer.  Let's do it for them and the rest of us living it day by day.

Thanks for reading #500 of 7777. 

#499 Hanging on For You

Hanging on for these three plus three more!

I'm hurting. I'm angry. I'm fed up with this whole cancer "journey".  Who would decide to go on a trip like this for crying out loud?  It's the pits.

There--that rant is over and now it's time to focus on what to do about it. 

  If you have already taken out your wallets, thank you.  Now, don't go away yet.  Get ten (or more) people to donate by the end of the year.  Ask them to share their holiday gift giving with those of us who might not make it to the next one.  If your ten (plus) friends could donate ten dollars (or more) and then those ten (+) friends had ten (+) more friends...well, you get the picture.  This could be monumental!  And you would be part of it.  Helping the MBC community celebrate because research is working for us.

How can you do that?  The explanation below explains the new direction of our who, what and why  intentions.  Rewrite it in your own words and send it out in a mass email to your friends.  Tell them about your buddy Mary; or Megan or Kelli or Beth --someone you know living with this disease.  Tell them we are trying to save my daughter and grand daughter or theirs.  Tell them we need their help TODAY.  Tell them we can not wait for another holiday season to go by without a cure.  Tell them time is running out for many of us.  Please, just tell them...

To our Friends,

Our intent in raising funds has been to support the best research that can create drugs and treatments for the metastatic breast cancer patient. The goal has always been to increase the precious time we have with loved ones.

We are pleased to announce a collaboration of One Woman Many Lakes with the breast cancer research group at the University of Wisconsin Carbone Cancer Center. UW Carbone is nationally recognized as a leader in research that translates to specific drugs and treatments for those living with MBC.

A fund specifically for MBC research (called More for Stage IV) has been set up at the UW Foundation. Our goal is to raise at least $50,000 by the end of the year to award a fellowship in the breast cancer research field for a year. This is a highly tangible way to develop the next generation of metastatic breast cancer researchers.
All donations received by December 31 will be matched! Click the DONATE button on www.onewomanmanylakes.org and give those with MBC more time. 

It's in your ball park now.  We are tired, hurting and trying to hang on, so please, show us we are worth it.

Thanks for reading # 499 of 7777.

#498 I Refuse to Get Bucked Off In This Rodeo

Dr. Ruth O'Regan

I'm back after a difficult November and am ready to slash back against cancer with force.   Do you hear the blood curdling scream of anger?   The ugly fact is I do not have the time to wait for the Moonshot to deliver the money or cancer organizations to figure out who gets how much funding.  I need answers and a cure NOW.

  Recent scans disclosed this *$&# cancer has decided to outsmart the faithful drug that has been my daily companion for twenty-six months.  A brief side note--the longevity of this treatment is almost an unheard occurrence in the stage iv community.  Although it's been a good ride--manageable side effects--the gig is up and it's time to move on.

This somewhat bump-less joy ride came to an end with progression found in both hips, pelvic area, upper arms and shoulder blades.  My favorite onc doc broke the news to me with the reassurance of another drug up his sleeve for tackling the next rodeo (or round of treatments, however, I like the sound of rodeo--makes me feel like a cowgirl).

But I digress...

With this down right crummy news it is with more gusto than I would have previously announced that One Woman Many Lakes will be partnering and raising funds with none other than the one and only

UW Carbone Cancer Center here in Madison, Wisconsin. 

 The UWCCC is a nationally recognized leader in breast cancer and specializes in research that translates to specific drugs and treatments for people just like me.  This is what I need right NOW.  I can not wait five more years and hope to figure out why my cancer cells mutated and spread to other parts of my body. Hope is not a strategy.  Research with money backing it along with top notch researchers will give me the treatments I need... and that is a hopeful strategy.

The brilliant Dr. Ruth O'Regan (from UW Carbone) and her band of heroes have devoted their lives to saving my life along with my 250,000 friends living with MBC.  She and the others will not allow 113 sisters, mothers, friends to die every day on their watch as they seek to find the link to end this dreadful disease.  I'm thrilled they are willing to ride in this rodeo with me, and for that reason I support their valiant efforts with a little ($$$) help from my friends (you!).

Stay tuned to what you can do to help--we need it more than ever before (written by someone who is a little undone by the latest scan).

Thanks for reading # 498 of 7777.

#497 No Words But Getting There

The next generation

Just begin.  One word at a time and maybe the rest will follow suit.  Since my sister's unexpected death and now the news of my cancer spreading, I have found it difficult to concentrate on anything except getting from day one to day two.  Writing was once my refuge.  Now there is no consolation.

Heavy burdens to carry and as I trudge forward through the murkiness of life I am mystified by our belief of a blissful carefree existence where everything goes as planned.  Wrong! Life never received the "happiness" memo and although deep down in our gut we understand it as tragedies do occur, we still carry this wild belief that if we follow the rules we will live happily ever after--prince (or princess), glass slippers and all.

But I must look on the bright side--the glass half full--the "gather the troops 'cause we are going to win this one". Reflecting on the months prior to my week from hell we were blessed with a much anticipated new grand baby and my daughter's wedding that took my breath away with the beauty and family love surrounding us.  Those are the things I cling to and comfort me when feeling overwhelmed.  Good things do happen so when we get blindsided and punched in the gut, we remember with sweet memories soothing our broken-hearted souls.

  I will wallow when needed but to move forward I must continue to advocate for more funding and research for metastatic breast cancer.  My campaign has intensified, my purpose deepened because I now fight to stay alive to be there for my sister's children and grandchildren.  I am their champion to find a cure so they will live long lives without this disease lurking in their future.

 My sister is smiling thinking of me as the caretaker when she was always the master at watching over all of us.  Rest now, Kathy, and we will take it from here.

Help me help them and all of our children.  Go to www.onewomanmanylakes.org and donate, get involved and stand with me. This would make my sister pat you on the back with the words, "Good job and thanks".

Thanks for reading #497 of 7777.

#496 The Circle of Life

Grandpa with little Jordan Kathryn

I can not make sense out of it.  I am living with stage iv metastatic breast cancer--a deadly diagnosis with horrible statistics if you want to stay alive.  33 months is the median survival time.  I am on month 29 and still hanging in there hoping to pass the next milestone.  But this is not what has me completely undone.

What has turned my life upside down is the sudden loss of my fun-loving, talented crazy younger sister due to complications from a double knee replacement.  It is mind boggling, devastating and crippling right now.  She was not to die first--that was my doom. We didn't have time to discuss how, after I was gone,  she was to continue to parent/advise my three adult children (yes, they will always need additional parenting), fawn over my granddaughter and watch over Rob.  She, along with my older sister, were going to carry on, share the memories of our childhood, be there for each other.

Sisters

And now she is gone and my heart is breaking.  Not only for the loss of my best friend but for everything we had left to say to each other.  I am told to cling to her memories, cherish the good times and time will heal.  Right now "carrying on" does not seem possible. I want her here by my side because she was the one who gave me strength to keep going.

Sixty-two years old, recently retired from a successful teaching career and a new grand baby on the way. How does life switch gears so quickly?  Her legacy of love left behind include her beloved husband--sweethearts since eighth grade--and her four rock star children who would make anyone proud to even know them.  The super stars of her life were her seven grandchildren--Baby Jordan Kathryn arrived on Friday.  Their grief is palpable as they try to make sense of her loss.

Her numerous lessons taught us how to live--grab on to life and swing from the highest tree.  Learn and teach others was her mantra.  Case in point--she helped me make a quilt for my unborn granddaughter when I was at my lowest point after finding the cancer in my body.  At the time I could not even fathom rising each morning let alone be around when my first grandchild arrived.  She somehow knew I would hold this precious bundle in my arms one day soon.  Her no nonsense approach was to "get sewing and get it done"--and we did.

Anyone who has a sister knows that special bond.  A bond that ties you together with love, memories, laughter.  She knew me better than I knew myself.  Did she know I would survive her death and would be the one responsible for being there for her family?  Maybe she was aware of her limited time and that was why she seized life with such gusto.  I will miss this about her.  Even though I was the older sister, she was the wise one who taught me.   Sage beyond her years.

It has been a crushing blow but tomorrow will come and I will get up with a smile on my face when I picture her sewing her quilts or laughing at a joke. My loved ones will be hugged a little tighter, a little closer because of her and I will remind myself how lucky I was to be her sister for sixty-two years.

Thanks for reading # 496 of 7777.

#495 Give Us More Than a Dime for Much More Time

My heroes: Dr. Bonnie King, PhD and Dr. Christopher Contag, PhD

These are my heroes.  No red flowing capes or pointy things on their ears with a mask covering their grins; simply super heroes disguised as "Champions for the Metastatic Community".  They are researchers who are using their brilliant minds to find a cure and are the well deserved recipients of one of the METAvivor research grants for metastatic breast cancer.  Hallelujah!  They understand we need answers NOW and are doing something about it.  Thanks to METAvivor for recognizing and rewarding their talents.

Now you may ask, "But what can I do?".  You can make a difference.  Your donation today will help us achieve our goal of $20,000 by the end of the year and get us one step closer to giving us more time. Remember, it is all Heather and Maggie wanted and what we wanted for them--TIME.  It didn't happen, however, there are thousands of Heathers and Maggies clinging to the hope that these researchers and other like-minded pioneers in the field will find a magic combination of drugs to give us that precious commodity.

Here's a brief synopsis of what this grant will do.

Christopher H. Contag, PhD

Professor, Departments of Pediatrics, Microbiology & Immunology, and Radiology 

Bonnie L. King, PhD

Instructor, Department of Pediatrics

Stanford University

Modeling Therapeutic Strategies for Breast Cancer Metastasis to Bone 

In this grant application we propose to study the “vicious cycle of bone metastasis’ in our human bone culture model. We will: 1) Develop methods to measure how much bone is being broken down, 2) Demonstrate that we can reverse bone destruction in our model with bone targeting drugs currently used to treat bone loss in osteoporosis and metastatic cancer, and 3) Measure the effects of these drugs on breast cancer cells growing in human bone tissues. These experiments will show that we can measure the cell and tissue responses that occur during late stage bone metastasis, and modify them with current drugs. This will prove that our model can be used to test new, more effective approaches to prevent and treat breast cancer metastasis to bone.

Discovering the illusive jackpot of a cure is not a simple task to undertake but if Dr. King and Dr. Contag are game so are we to support their research.  To make sure they can continue their critical work go to www.onewomanmanylakes.org and donate.   All of us with the disease, along with our children and spouses and grandchildren and friends, will be forever grateful for our precious extra  TIME.

Thanks for reading #495 of 7777.