The Capitol in Washington, DC--the place where our voices should be heard was our wild and crazy Thursday talking with anyone who would pay attention to us.
It was a day that flew by while we literally ran from place to place speaking with senators, our representative and the Speaker of the House. Across the party lines we were well received as I told my story about the lack of research dollars for MBC, the need to increase funding of NCI and how SEER needs to include us (stage IV) in their data tracking.
Senator Baldwin's office allowed us an entire hour--part of which we spoke to an engaging young woman seemingly appalled with the horrible statistics and facts of this disease. After our meeting she introduced us to Senator Baldwin and encouraged me to tell my story--again--so the senator could hear it. Yep, she understands what we want and how we can't wait for everyone--Republicans and Democrats-- to get on the same page. I kept stressing time is critical--we are dying.
|On the Speaker's balcony|
From there we hightailed it over to Speaker Ryan's office and arrived 25 minutes early. No problem as the (again, very young) aide gave us a tour of his main office and explained the history behind the Speaker of the House. Speaker Ryan was gracious and supportive and, of course, reassured me of his support in the fight for more funding. His mother-in-law died of this disease so knows the devastation it leaves behind.
|Senator Johnson's aide|
If the only outcome from this encounter is the word "metastatic" on everyone's radar--I feel it was a successful first meeting. Unfortunately it is not over yet and we will be back to keep the push for more funding. Don't ignore stage iv.
Remember to share and go to www.onewomanmanylakes.org to donate and find out how you can help.
Also, go to White House Petition for Metastasis to sign a very important petition.
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